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Community Data Contribution Program (CDCP)

What is the Community Data Contribution Program?

The Community Data Contribution Program (CDCP) provides a means for sharing data and other resources that are not directly funded through the Accelerating Medicines Partnership (AMP-AD) Target Discovery Program or another Portal-affiliated program. In other words, it is a fee-for-service model which enables new and seasoned contributors alike to submit data for inclusion in the AD Knowledge Portal which was not generated through one of these existing programs.

CDCP Eligibility & Requirements

  • The CDCP is open to data contributors supported by the NIA and other NIH institutes, as well as researchers supported by other federal agencies, non-profit or for-profit organizations.

  • All CDCP contributions to the AD Knowledge Portal are required to be approved in advance by program staff at the NIA. Prospective contributions are evaluated based on relevance to Alzheimer's disease, complementarity to existing data, and unmet needs.

  • Your data must be eligible to be shared for General Research Use (GRU) under the terms of the AD Knowledge Portal Data Use Certificate, with no publication embargo or requirement for collaboration. According to the NIH Genomic Data Sharing Policy, use of GRU data is limited only by the terms of the Data Use Certification. If other limitations on sharing apply (e.g. the dataset can be used only for research on a specific disease or related condition, use is contingent upon IRB approval, etc.), the data is not eligible to be shared through the AD Knowledge Portal through the CDCP.

  • Data must be provided with associated metadata, study, and methods documentation — see Assemble Metadata for more.

  • A Data Transfer and/or Data Sharing Agreement will be required before upload.

The CDCP is a Fee-for-Service Program

While portal development is supported by the NIH-NIA (U24AG061340), data management and curation services led by Sage Bionetworks rely on shared funding models. Data curation and governance team support for the Community Data Contribution Program (CDCP) is funded through the contributing investigator's award(s). Contributor fees do not cover data storage, which is separately funded by the NIA through the NIH STRIDES Initiative, and/or by the AWS Open Data Sponsorship Program.

CDCP data ingestion requires a fee-for-service agreement. We want to avoid turning away valuable datasets, so please reach out early to ensure budget alignment.

What Your Costs Cover

Your consulting support fee covers the tools and services needed to distribute your approved data contribution through the AD Knowledge Portal, including:

  • Consultation with the Data Curation Team to support data deposition, including setup of project infrastructure, training on Sage's in-house data coordination tools, support for data dictionary and model updates, and support for data uploads and final validation before release.

  • Consultation with the Governance Team at project initiation, including establishment of required data sharing or transfer agreements (see Confirm data sharing documentation) and selection of your data sharing model (open vs. controlled).

  • Ongoing service desk support, including management of data use requests by Sage's Access and Compliance Team (ACT), support for data uploads per the terms of your agreement, and support for Publication Datasets to enable transparency, discovery, and reproducibility of data associated with manuscripts.

  • Promotion of your data release in the AD Knowledge Portal newsletter.

How Quotes Are Determined

Because the scope of curation, governance, and help desk support varies by contribution, CDCP participation costs are calculated on a case-by-case basis. In general, your quote will reflect:

  • A one-time fee to establish a Data Transfer and/or Data Sharing Agreement with your institution.

  • An annual fee, scaled to the number of data contributions expected that year. A "data contribution" refers to one or more datasets shared under a single study within the Portal's architecture (Program/Consortium > Project/Grant > Study) that can be released together in a single release cycle — so multiple studies, or multiple releases of the same study, count as multiple contributions. Most contributing groups elect to upload and release data once per year per study.

Quotes are valid for one year from the date issued, and apply only to the specific project and services described in that quote — any changes to expected data or timeframe will require a new quote, which may result in a change in cost.

Expected Timeline

Once your CDCP contribution is approved, the general process and timeline for sharing your data follows the same process as any other AD Knowledge Portal contribution — see Contribute Data for a full walkthrough, including our recommended 8–12 week lead time. Because CDCP contributions also require establishing governance documentation (and, in some cases, an initial quote and approval from NIA) before that process can begin, we recommend reaching out as early as possible, ideally well ahead of any publication, conference, or grant reporting deadline tied to your data.

Submit a Request to Receive a Quote

If you wish to be considered for the program, please submit a Service Desk Request.

This request can be submitted at any point in the research lifecycle, including before grant submission or after data has been generated.

However, to make the submission process as smooth as possible:

  • Start Early: Reach out to us while drafting your grant application.

  • Request a Quote: Contact our team through the Service Desk to request a customized quote which can be incorporated into your DMSP and grant budget from the start.

Importantly, submitting your request prior to grant submission will help ensure your proposed budget includes adequate funds to support data sharing. CDCP data ingestion requires a fee-for-service agreement, and we want to avoid turning away valuable datasets; please reach out early to ensure budget alignment!

See also: NIH's guidance on Budgeting for Data Management & Sharing.

Upon receipt of your Service Desk Request, we can provide you with the following:

A Note on Working Relationship

A CDCP agreement establishes a vendor relationship between Sage Bionetworks and the contributor, focused specifically on coordinating the sharing of your data through the AD Knowledge Portal. If you're interested in a more collaborative working relationship — for example, ongoing participation in working groups or steering committee meetings — let us know, and we can discuss other options that may be a better fit.


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